Rare disease patients seek treatment

In a recent article at Time Magazine, they ponder whether or not it is time for Pharma companies to begin treatment for rare diseases. For the most part, many go unresearched due to the small numbers of people affected, which often leaves too few people to undergo clinical trials. An estimated 8% of the US population suffers from a rare disease.

Some professionals, including Dr. Christopher Forrest of the University of Pennsylvania and colleagues from the Office of Rare Diseases Research at the National Institutes of Health have issued a call for a rare disease directory that would serve all worldwide. This would allow international collaboration between patients and doctors to find treatments for the diseases.

Do you see this as a part of the future for the Pharma industry?

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